I had mesenchymal chrondosarcoma it’s not a face cancer as such it can be anywhere in the body, it was growing behind my eye on my optic nerve.
Because the cancer was so rare there was no chemo known to kill it, the best way is surgery, but it is known to regrow back in the same place to make sure they have good margins if it was in the foot the leg would be amputated from the knee! One of my surgeons said ideally they would need to chop my head of to get the margins needed! Obviously they could not do that so instead they settled for just my eye socket. I had the operation June 2018 and radiation for 6 weeks in November 2018.
There was always a risk that the radiation could damage the skin and in August 2020 a hole appeared in the flap of skin where my eye once was. I will have surgery on it to cover the hole again soon.
The crazy thing is that I can breathe via my eye socket hole, the surgeon has said convid can cause problems if you get it during or after the surgery so I’m going to wait and see how things are in the new year.
To see more pictures and videos I’m @eyeofthesarcomacancer on Instagram there’s a recent video of me blowing bubbles out of my eye socket, to many it’s amusing but it’s actually more to show how much air comes out my eye socket xx